Maintaining a Hopeful Attitude

▼ After being admitted overnight for my first chemo & other treatment.
If you know your hair is falling out next week, why wouldn’t you do this?
(put a water bottle inside and decorate with hospital gloves)

After being admitted overnight for my first chemo and all sorts of other things.  If you know your hair is about to fall out, do something fun with it! Like put a water bottle inside and decorate with hospital gloves, of course.

▼ “None but Jesus” at Soul City Church our last Sunday before it all began. Took out my phone in the middle of the song to snap a pic because I knew I’d need to remember that moment. 

"None but Jesus" at Soul City Church our last Sunday before it all began. Took out my phone in the middle of the song to snap a pic because I knew I'd need to remember that moment.

▼ One of my favorite nurses, Peggy! We had to put masks on whenever they needed to access the source of my PICC line. And in order to come in my room people had to put on these plastic gowns/gloves to decrease the chance of spreading germs.

One of my favorite nurses, Peggy. Had to put masks on whenever they needed to access the source of my PICC line.In order to come in my room people had to put these on to decrease the chance of spreading germs.

▼ My first blood transfusion. Pretty heavy getting someone else’s donated blood—makes you think about the total sacrifice of Christ, and how he freely shed ALL his blood to give us salvation.

My first blood transfusion. Pretty heavy getting someone else's donated blood—makes you think about the total sacrifice of Christ, and how he freely shed ALL his blood to give us salvation.

▼ FaceTiming with #jackiethadog of course.

And of course, there's #jackiethadog

 

 

 

 

 

 

Thank you to our church families, family and friends! All these incredible expressions of love, prayer, hope and support were a huge source of encouragement in my hospital room—I got lots of compliments on “my wall.”

A huge source of joy and encouragement! All the incredible expressions of love, prayer, hope and support from church families, family and friends!

10 Things Keith Did to Keep Us Afloat

At the Residence Inn during November or Northwestern Memorial Hospital during December…

10. He spent hours creating an entertainment center (basically getting the Apple TV, Xbox and internet FUNCTIONAL)! It was his mission. From NetFlix to HBO Go, iTunes, Pandora, Amazon Prime, and dozens of Breaking Bad DVDs, we pretty much had every show/service anytime. Continue reading

Love & My First Chemo

It was really scary being in a big city away from home when I couldn’t walk and didn’t know my way around. Keith made everything okay, but then he had to leave. He was contractually bound to play a gig a week after we got here so he had to fly home.

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Kelsey, one of my best friends, came to stay with me during that critical and scary time—bringing me to the hospital for my first chemo treatment/being admitted. Continue reading

Go-time

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Ok fam it’s go time..

My blood counts started rising (a big celebration for us stem cell patients!), so can you join me in praying specifically for my WBC to shoot all the way up to 1.0 by sometime tomorrow?! That’s what is necessary for my discharge, which we’re all (us & medical team) hoping/expecting to occur tomorrow. But it all comes down to that WBC getting to 1.0!

We’re Back – [Guest Post from Keith]

Well we’re back in Chicago. And it’s go-time. The last few months have felt like go-time, but this really is go-time.

After a much-needed quick trip home for Thanksgiving, Emily and I arrived back 6 days ago. 5 of them, she’s been in the hospital. She just finished her 4th (and last) day of chemo yesterday. Her last ATG treatment was overnight last night. ATG is a heavy-duty immunosuppressant. And today is the big day where the 32 million stem-cells will be reintroduced to Emily’s blood. From there, the docs will monitor her blood count, give her transfusions as needed, and wait for her nearly non-existent immune system to show some life again.

The main thing people have asked is, “How is she doing with the chemo?” I’m thrilled to report that outside of some fatigue, she hasn’t experienced many side-effects. She’s had very little nausea, which has been quickly treated by meds (and Queazy Drops from Tamara). The docs say that the chemo affects everyone differently, and no doubt God’s grace has been shown by how it’s affected, or not affected, Emily.
Two last things before I go:
1 – Emily is handling everything like a pro. There is a lot of resting and sleeping, but as you might expect, her joyful attitude and wackiness (in a good way) have brought smiles to all the nurses and patients we come in contact with. Her enthusiastic attitude has also kept her spirits positive in situations where most people’s may not be. We know this is because of God’s peace and strength, and through the prayers of our friends, family and even strangers.
2 – If you know us well, you know that Emily and I are both talkers. We like to have fun and are never short on words. But honestly, when it comes to the support and love we’ve been shown by everyone, we really don’t know what to say. We have talked many times about how amazing it has all been. From the outpouring of financial gifts…to the hourly prayer times…to the texts just saying she’s being prayed for…to simply reading this blog…we know that it’s all provision from God and because we are well loved. So thank you.
Please keep praying that Emily would respond well to the rest of the meds, transfusions, treatment, etc. She already has some ideas and plans for blogging once she feels better. Comment on her blogs and let her know that you are reading.
Thanks!
Keith

How’s the Hair? PART 1

When we found out the transplant would become a possibility, I realized: I care about my hair. DEFinitely not as much as Will Ferrell in The Campaign (or Anchorman) :), but I do care. I had never considered this before but I guess once you know you’re going to lose something, you start to appreciate it more.

I hadn’t been appreciating it… Me + high messy bun = BFFs. What style could be better than this 30-second, über-versatile ‘do? For months I sported a top knot literally every day. Whenever I’d wear it down people would comment on my, “long, beautiful hair,” and how they “never knew!”
Yikes! Guess I really confined my hair to exist strictly above my head? But designing your own head is fun. Why don’t I do that anymore? I always enjoyed it. So I adopted a new M.O. and styled my hair/did something funky—or at least had it down/plain—basically every day. I’m glad I did that because it’s gone now.

They said I’d start losing my hair 14 days after the initial dose of chemotherapy, so it started falling out last Monday. I made an appointment with my stylist—Carolina (-leena) at The Kindest Cut Salon—for the next day. I was donating to Locks of Love and couldn’t procrastinate any longer. In order to give the longest amount possible I found a short, edgy style I wanted to try. Carolina offered to take before/after pics, and then I enjoyed the challenge of styling short hair–it’s tough until you get the hang of it! And a real pain when your hair seriously starts falling out, i.e. Friday.

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Second Half of Saturday’s Post

I was trying to write a post on Saturday, but kept running into technical hurdles—specifically with the last part. I was doing it on my phone, from the car, traveling in and out of network coverage. After spending the entire day rewriting it 3 times, I posted what I had, ate some ice cream and called it a day. Thus, the unfinished ending to my post on 11/23.
(Already know how to be successful next time. Although, I’d imagine NOT being on narcotics is a good start.)

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Since last week I’ve been continuing to process what happened during my vascular catheter procedure. Lots of you have said things about how strong I am and I do appreciate the encouragement. But I want to be honest with you—I, myself, really have no ability toundergo that kind of experience. I never would have been able to endure that nightmare. What sustained me during the procedure was the strength of our God.

None of us would have expected that to happen. But God, in his infinite wisdom, knew I would need an army of prayer warriors for what was coming that day.

Of course, God doesn’t need our help—he’s omnipotent and could have accomplished every bit of provision without anyone praying.

But a part of the vision he gave Keith and me for this season was: doing life in authentic community, junk included. So in pursuit of that vision, everyone praying was instrumental—and God made a way for that to happen through Kelsey, and all of you praying. So again, thank you for your prayer, support and for walking through this with us.

NOW, why we were in PA on Saturday [and now, home!]…

Because 1) the stem cell harvest was done after just the one day, and 2) the way the schedule lined up, we didn’t have to do anything at the hospital again until December 4. So we decided to rent a car and drive home for Thanksgiving week!

I’m still dealing with lasting side effects of the initial round of chemo from a couple weeks ago, and also the neupogen making its way out of my system. So I’m laying low, but definitely glad to be home! As soon as we go back next week, everything gets intense. Or, it’s all downhill from there. I go in-patient starting December 5  (basically for the rest of the time) starting with 4 or 5 consecutive days of chemo. So for now, we’re enjoying being home :)

Thanks for reading!
Lovemily ;)