10 Things Keith Did to Keep Us Afloat

At the Residence Inn during November or Northwestern Memorial Hospital during December…

10. He spent hours creating an entertainment center (basically getting the Apple TV, Xbox and internet FUNCTIONAL)! It was his mission. From NetFlix to HBO Go, iTunes, Pandora, Amazon Prime, and dozens of Breaking Bad DVDs, we pretty much had every show/service anytime. Continue reading

Second Half of Saturday’s Post

I was trying to write a post on Saturday, but kept running into technical hurdles—specifically with the last part. I was doing it on my phone, from the car, traveling in and out of network coverage. After spending the entire day rewriting it 3 times, I posted what I had, ate some ice cream and called it a day. Thus, the unfinished ending to my post on 11/23.
(Already know how to be successful next time. Although, I’d imagine NOT being on narcotics is a good start.)

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Since last week I’ve been continuing to process what happened during my vascular catheter procedure. Lots of you have said things about how strong I am and I do appreciate the encouragement. But I want to be honest with you—I, myself, really have no ability toundergo that kind of experience. I never would have been able to endure that nightmare. What sustained me during the procedure was the strength of our God.

None of us would have expected that to happen. But God, in his infinite wisdom, knew I would need an army of prayer warriors for what was coming that day.

Of course, God doesn’t need our help—he’s omnipotent and could have accomplished every bit of provision without anyone praying.

But a part of the vision he gave Keith and me for this season was: doing life in authentic community, junk included. So in pursuit of that vision, everyone praying was instrumental—and God made a way for that to happen through Kelsey, and all of you praying. So again, thank you for your prayer, support and for walking through this with us.

NOW, why we were in PA on Saturday [and now, home!]…

Because 1) the stem cell harvest was done after just the one day, and 2) the way the schedule lined up, we didn’t have to do anything at the hospital again until December 4. So we decided to rent a car and drive home for Thanksgiving week!

I’m still dealing with lasting side effects of the initial round of chemo from a couple weeks ago, and also the neupogen making its way out of my system. So I’m laying low, but definitely glad to be home! As soon as we go back next week, everything gets intense. Or, it’s all downhill from there. I go in-patient starting December 5  (basically for the rest of the time) starting with 4 or 5 consecutive days of chemo. So for now, we’re enjoying being home :)

Thanks for reading!
Lovemily ;)

Total Stem Cells & Why We’re in PA Right Now

2 million stem cells were needed from Thursday’s harvest. The # of my stem cells collected was 31.16 million! Crazy…
The fruit of 6 days of waking up at 6am to do 2 injections of the growth factor Neupogen—to help my stem cells grow and move from my bone marrow out to peripheral blood.

The side effect of Neupogen they warned us about was “bone pain.” That was vague and kind of creepy sounding.. Not descriptive enough to be helpful in knowing what to expect. Well, we found out what it’s like and there’s really no good way to describe it! Some people don’t get it as bad as others and apparently there’s a correlation between the amount/degree of bone pain to the # of stem cells collected. That makes sense because by the time Tuesday rolled around my pain was through the roof. In a 31 million vs. 2 million kinda way :) So that validation was nice for some reason.

Since Thursday I’ve just been continuing to process what happened and what that was like. Lots of you have said things about how strong I am and I really appreciate the encouragement because it’s made me realize it doesn’t make any sense. God has given me clarity about it. See because I never would have been able to endure that myself.

I’ve thought about that some and God gave me some clarity on that—the

The Dreaded MRI

Our first week here in Chicago consisted of basic medical tests to make sure my body can handle the transplant. Keith and I spent the week running around the hospital and various buildings each day. I had a bunch of tests on Thursday–MRI, chest x-ray, dental eval, labs & EKG. It all started with the worst–the MRI. Well, technically 3 different MRIs, so about 2 hours total.

Over the years MRIs have become really difficult because it causes a tremendous amount of pain trying to lay perfectly still for an extended period of time. It’s the worst. The technician often tells me I’m moving and they have to repeat a scan, (or 3 :/). The reason I move—and I try my very best to NOT move at ALL—is because my body gets so stiff and tense trying to lay perfectly still, and the pain slowly builds to new levels each until I can’t take it anymore.

I’ve developed a variety of methods to help me cope through MRIs—basically anything to distract me from the pain… Listening for all the different tones. It’s interesting to listen to both the wretched dissonance and the quirky harmonics of the machine. Also, the incessant—and nearly violent—rhythm of magnets clanging around for the various scans. I try to find some sort of imperfection from my span of view inside the machine. There’s usually a scratch or smear you can find, or some sort of mark on the interior surface. You can try to imagine what different shapes the mark could be, like you would with clouds in the sky. Really, MRIs are awful for me, no matter what I do.

But this was unlike any MRI I’ve ever had!

When they were escorting me back to radiology the technician explained I’d be able to listen to music during the MRI scans. (Uhhhh, what?! HOW!) He explained they had a pair of all plastic headphones that doesn’t interfere with the scans and allows them to play music for patients. (!!!!?!??!?!?!?!) When I was all set up with my IV, a blanket and the headphones, the bed started receding back into the machine and he asked what Pandora station or artist I wanted to hear (!!!!!!!). I said, “Yes, an artist–Keith Elgin.” The MRI machine was up and running a minute later with its raucous noises.


After another minute the voice of the love of my life floated above reality as I heard “Stronger” start to play through the headphones. I lay there in this entirely surreal moment, filled with total peace and comfort. I thought, “Wow. This is happening.” By the time it really hit me around the first chorus, tears were streaming down the sides of my face. These were the kind of tears that didn’t stop—the experience of being so overwhelmed by emotion that your body takes over and decides to cry, without your knowledge or permission!

Then I was laughing about how I couldn’t stop crying,
and how unbelievable all of it was…

 “Stronger” from Our Hope [Live] by Keith Elgin.

A few songs later was “Dance, Dance, Dance,” at which point I was grinning ear-to-ear inside that machine… I was picturing Chloe, our fabulous 4-year-old niece, breaking into super-energetic dance and singing along! Such happiness :) She calls it “The Keith Song.”

At one point (well actually I think it was 4 times total) the technician buzzed in over the speaker saying he had to repeat some scans because I had been moving. I always feel bad about that because it’s annoying for them and it takes longer, but I really do my best. He got more grumpy each time, so I felt more and more like a fool, apologizing. Then it turned out he had to leave and got another radiologist to cover for him because it was running into his dinner break. So when they wheeled me out of the machine to put the contrast in my IV, this new radiologist greeted me and explained.

She was cheerful and kind, with a gentle spirit. She took care to update me between each of the scans, encouraging me and saying how long the next one would be. She also gave me breaks and explained what parts of my body I could move. She regularly asked how I was doing.
It was like an angel had arrived to run the MRI.
And her name was no coincidence—Gloria—like my mom.

So I got to finish up this 2-hour MRI listening to my husband sing about God and feeling the loving and caring presence of my mom.


Some thoughts & reflections from inside the machine:

This is unbelievable…

…fragmented thoughts of bewildered gratitude, trying to wrap my mind around the astounding love of God…

Is this real? This is really my life?
I can just say my husband’s name for a Pandora station?!

And, go out to that same guy in the waiting room, who’s eager to see me and find out how this one went?
The waiting room of Northwestern Memorial Hospital…
But this time we are getting the transplant?
It’s really happening…

And everyone we know is in it WITH us…


From all around the U.S., hundreds of our best friends, family members — and many we’ve never met – helped us get here.

And made all of this possible.

By the provision & crazy love of God.